PanCake Breakfast for Wife
09-03-2005, 10:18 PM
#1
PanCake Breakfast for Wife
I wanted to write a thread on this before but thought it wouldn't be right to do. My wife Traci has been diagosed with a disease called Myasthenia Gravis. She's only 34 yrs old and has her whole life ahead of her. Well she did till she was diagosed a little over 2 yeaars ago. She has been admitted to Johns Hopkins twice in those two years getting ChemoTherapy treatments. Both Chemo treatments did not work. Right now she is on her third time of Chemo but is now doing it locally here in New Jersey. I met her just about 3 yrs ago, a Nurse who loved to ride her Harley Davidson, She loved to work out, Ski, Rollerblade and anything else to get her outdoors. now she is very limited in what she does. I am a Police Officer and belong to the Fraternal Order of Police, Middletown NJ. The Union has planned a Pancake Breakfast in order to help the both of us with Major Bills and other things like a Working Dog to help her get through the days and nights when she is weak.
A little information on this disease.
Myasthenia gravis: Most often, an acquired disorder that results in fatiguable muscle weakness, made worse by activity and improved with rest. It results from an autoimmune attack against the nerve-muscle junction. Other forms of the illness are caused by architectural changes of the nerve-muscle junction.
Basically its a disease thats very severe to the muscles in your body. The become very very weak, causing most organs to slow down. Your Heart is a Muscle. She has had this disease for over two years now and has been in the hospital more then home. She does not work anymore and is on full diability. So if anyone knows what full disability means, basically about $13,000 a year. Traci was a Critical Care Nurse when she was stricken with this disease.
I will post a Date and Time when the Pancake Breakfast Fund Raiser will take place, It will be sometime in early October and well would appreciate anyone that could stop by and eat some pancakes. Traci will be there because she wants to make some of the pancakes. I just wanted to say Thank You to everyone on the Org, I have had many a questions and well everyone here has helped me with my Maxima in many ways. Also, I am not sure how I would go about setting up a donation on here. I was thinking of setting up a website for her so everyone could read a little about her and possibly donate to help her. For now I can post my paypal if anyone is willing to donate.
PayPal address is hct67@msn.com
I thought maybe I would also post a picture of my wife when we met and now Once Again, Thank You Everyone Here on the ORG.
Harvey
A little information on this disease.
Myasthenia gravis: Most often, an acquired disorder that results in fatiguable muscle weakness, made worse by activity and improved with rest. It results from an autoimmune attack against the nerve-muscle junction. Other forms of the illness are caused by architectural changes of the nerve-muscle junction.
Basically its a disease thats very severe to the muscles in your body. The become very very weak, causing most organs to slow down. Your Heart is a Muscle. She has had this disease for over two years now and has been in the hospital more then home. She does not work anymore and is on full diability. So if anyone knows what full disability means, basically about $13,000 a year. Traci was a Critical Care Nurse when she was stricken with this disease.
I will post a Date and Time when the Pancake Breakfast Fund Raiser will take place, It will be sometime in early October and well would appreciate anyone that could stop by and eat some pancakes. Traci will be there because she wants to make some of the pancakes. I just wanted to say Thank You to everyone on the Org, I have had many a questions and well everyone here has helped me with my Maxima in many ways. Also, I am not sure how I would go about setting up a donation on here. I was thinking of setting up a website for her so everyone could read a little about her and possibly donate to help her. For now I can post my paypal if anyone is willing to donate.
PayPal address is hct67@msn.com
I thought maybe I would also post a picture of my wife when we met and now Once Again, Thank You Everyone Here on the ORG.
Harvey
09-05-2005, 08:51 AM
#11
Senior Member
Join Date: Mar 2005
Posts: 625
just remember that god doesnt give us life situations that he knows we cannot handle. he will be there for u both and the rest of ur family. have faith and trust in him. he will be there when u cry out to him.
i will keep ur family in my prayers
i will keep ur family in my prayers
09-05-2005, 09:38 PM
#16
Picture
[IMG]Well, I just wanted to post another picture of her and I, this was taken in July right after another session of ChemoTherapy. I will admit, she is one tough person and I give her all the credit in the world for not giving up.[/IMG]
09-06-2005, 01:30 AM
#17
Hit 'em with the stun gun
Join Date: Nov 2004
Posts: 368
Originally Posted by wikidminds
just remember that god doesnt give us life situations that he knows we cannot handle. he will be there for u both and the rest of ur family. have faith and trust in him. he will be there when u cry out to him.
i will keep ur family in my prayers
i will keep ur family in my prayers
09-06-2005, 09:02 AM
#18
I just wanted to say Thank You for the people that have already dontated monetary funds to the PayPal address hct67@msn.com
Its been recieved and welcomed and to her surprise very happy. She can't wait for the pancake breakfast so she can meet everyone.
Harvey
Its been recieved and welcomed and to her surprise very happy. She can't wait for the pancake breakfast so she can meet everyone.
Harvey
09-06-2005, 09:49 AM
#19
hey you are on the middletown police force? small world im only one town away. I would love to join you guys for the pancake b fast as soon as a date and time is set. Beautiful wife, she looks like quite the trooper. My thoughts and prayers go out to you two and i hope so see you at the pancake b fast 
09-06-2005, 12:34 PM
#20
I am sending you some money.
This site is fantastic about helping take care of it's own. My son has MD (there is a sticky about it here, too) and I got so much love from everyone that I think it's important to give something, as well.
God bless you guys and good luck with everything.
Chris
This site is fantastic about helping take care of it's own. My son has MD (there is a sticky about it here, too) and I got so much love from everyone that I think it's important to give something, as well.
God bless you guys and good luck with everything.
Chris
09-07-2005, 01:31 PM
#21
Member
Join Date: Sep 2003
Posts: 36
I've been there man, leukemia, twice. I was first diagnosed at 2 and then had a transplant at 6. I know what it's like and your wife is very lucky to have such a strong person to stand by her. I was lucky to have my family and my sister (my donor). Stay strong man, nothing but my besh wishes and I will put you both in my prayers.
09-08-2005, 11:36 PM
#23
I would just like to say Thanks to Everyone on the org, My wife has been so incredibly touched by everyone's support here. She is also looking forward to meeting everyone at the pancake breakfast that can make it. Once again, Thank You to Every Org Member.
PayPal Address hct67@msn.com
PayPal Address hct67@msn.com
09-21-2005, 02:41 PM
#26
Update For Pancake Breakfast
Sorry everyone for taking so long with getting information on this event. A counsel was formed to prepare for the breakfast and they just got the dates from the VFW that were free. So the Port Authority Police is making the Flyers that will be sent out for the event. The Date is set for November 5, 2005 which is a Saturday. It will be from 10am till whenever. There also will be a BBQ along with some Alcohol and possibly a DJ playing music.The event will be held at the Middletown VFW. I will get directions for everyone who wants to come and make a donation and also have a great time with food and drinks. Once again, I appreciate everyones help with this and appreciate each and everyone that does show up.
Harvey
Harvey
09-26-2005, 09:03 AM
#27
Newbie - Just Registered
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Join Date: Sep 2005
Posts: 13
Our Thoughts
I'm a friendly neighbor to the north in canada, therefore i cannot attend.
Our thoughts go out to you and your wife, you are you very good looking pair. Stay strong and never let hope fade as the mind and heart can accomplish the impossible..
Our thoughts go out to you and your wife, you are you very good looking pair. Stay strong and never let hope fade as the mind and heart can accomplish the impossible..
11-08-2005, 02:17 PM
#31
Member
Join Date: Sep 2005
Posts: 30
I'm very sorry to hear this. You both are in my prayers. I know how it is knowing someone very close with a deadly disease. My mom passed away last June due to cancer. It was too late by the time we found out she had it, she died about a week later. God Bless.
11-13-2005, 06:46 PM
#33
Well, have some updated news on the Pancake Breakfast. Its going to be January 22, 2006 which is a Sunday. It's going to be held at the Middletown VFW from 10am to 10pm. The tickets / donations will be $10 and just to let everyone know inside the VFW there are numerous TV's which will have the footballs games on and also the Bar will be serving drinks but you will have to pay for them at a very reasonable price.
11-21-2005, 10:09 AM
#36
Senior Member
Join Date: Aug 2001
Posts: 1,503
Hello,
when I read this thread, I immediately googled the disease for more information. It's very terrible, and I hope everything goes well for her.
If you haven't checked yet, I recommend www.curezone.com for a list of possible things which others have done to help, who are in a similar situation.
My usual recommendation when people are undergoing chemo, is to take VERY VERY high doses of vitamin-c to help bring the nervous system back up... as I keep reading that chemo really damages the nervous system.
I would recommend a good amount of flaxseed oil at the same time.
It's great that she's a tough person, That's definetly a big plus, and I hope for the best! She cannot give up!
Frank
when I read this thread, I immediately googled the disease for more information. It's very terrible, and I hope everything goes well for her.
If you haven't checked yet, I recommend www.curezone.com for a list of possible things which others have done to help, who are in a similar situation.
My usual recommendation when people are undergoing chemo, is to take VERY VERY high doses of vitamin-c to help bring the nervous system back up... as I keep reading that chemo really damages the nervous system.
I would recommend a good amount of flaxseed oil at the same time. It's great that she's a tough person, That's definetly a big plus, and I hope for the best! She cannot give up!
Frank
11-27-2005, 02:25 PM
#38
Senior Member
Join Date: Jun 2005
Posts: 640
i'm really sorry to hear this, even though two months late. i know how you feel. my mother has a heart condition that could kill her anyday without warning, like it almost did. at 34 she had somewhere around 10 cardiac arrests within an hour. she was in the icu for a week but luckily she is still with me and my family. my grandmother also had a anurism last year, another hidden threat in my family i walk around with the knowledge everyday. the weirdest part was she stayed in all and only the rooms my mother did for much longer though. i can understand how you feel and the constant fear, anxiety, and the many other small things you endure every day. if i had a credit card i would donate to you and your wife since i live half way across the country. i really hope that you can remain strong along with your wife and make it through this. like the others said, my prayers are with you.
12-02-2005, 07:54 AM
#40
Senior Member
Join Date: Aug 2005
Posts: 101
I didn't read all the posts in this thread so I am not sure if someone has said anything like this or not. Yes, Myasthenis Gravis is a terrible disease! My Grandmother was diagnosed with that(A Mis-diagnosis), then diagnosed with Fibromyalga (mis.), then Multiple Schlorosis(sp?) (Also a Mis-Diagnosis) She had treatments for all three before they realised they made a mistake, then they re-diagnosed her with Fibromyalga. Point: Make sure the doctors are positive about what it is. My grandmother was also a nurse(I think you said your wife was). I know how these diseases can effect people and their abilities. All this happened a few years ago, my grandmother now has more energy, though she has good days and bad days, most anymore are good. I guess the point of me telling this is to let you know that it isnt something that is going to completely ruin your lives. With the right treatment/combination of medication, she will be able to do some of those things that she used to enjoy. Just keep hope and faith and hopefully everything will turn out alright. You will definately be in my thoughts and prayers.
Best wishes, Tim
Best wishes, Tim